Information for Parents and Families

DisabledOnline.com – The Internet portal for people with disabilities and special needs

Do Links

A blog about raising a child with cerebral palsy as a single parent.

DisabledOnline.com – The Internet portal for people with disabilities and special needs

FODAC provides refurbished equipment and services for disabled adults and children to improve their overall quality of life.

Providing professional financial planning through personal experience.

ERIC is the only charity it the UK that provides children, young people and their families with information and support on childhood continence problems which include daytime wetting, bed wetting and constipation and soiling.  The Helpline is available on 0845 370 8008 or email info@eric.org.uk .  Information, a web shop and free leaflets are available from www.eric.org.uk.

Quadriplegic and caregiver resources for those living with a spinal cord injury or other disabling injuries or disease of the spine.

Quadriplegic and caregiver resources for those living with a spinal cord injury or other disabling injuries or disease of the spine.

Unique Incontinence Products

Quality medical supplies at competitive prices

One Place for Special Needs is also a place that special needs families can call their own. “No one should have to feel alone when faced with caring for someone with a disability,” Villarreal said. “Together we can build a community where everyone understands what it is like to be a special needs family and reach out to help one another.”

DAYC is a nonprofit organization of early childhood education professionals and others dedicated to ensuring quality care for young children and their families.

DAYC provides leadership for professionals and families to promote partnerships on behalf of young children with special emphasis on quality education, awareness of developmental services, and access to resources.

When it comes to disability aids healthcare products, we are your experts.  Take a look around our site and find the disability living aids that best suits your style and needs.

Parent Directory related links to online parenting resources includes parenting advice, family activities, parenting information and parent experts, pregnancy, kids, adoption, family issues, parent’s tip, child care, health, literacy, family life, adolescence, and learning activities

This is a free Internet based health book with information about most major medical diseases, their symptoms, diagnoses, and treatments, all in simple, everyday language.

Exposing the crimes of mental health practitioners

The international coordinator of OMNI-Net is Dr. W. Wertelecki, M.D., who is a Pediatrician and Medical Geneticist. In Eastern Europe related matters, the Medical Director is Dr. L. Yevtushok, M.D., a Medical Geneticist. The Webmaster is R. Ameziane M.S., and Associate Webmaster is Mr. S. Lapchenko.

HealthBegin.com is a leading health website including sexually transmitted diseases, stroke health information, beauty, nutrition, physiology, alternative medicine,hospital, immunization, medicare, medicaid, pregnancy, physicians, dentists.

MyChild™ is a call center that provides information, resources, expert referrals, and inspiration to those touched by cerebral palsy and Erb’s palsy. 1-800-MyChild (1-800-692-4453).

DirectoryHealthy.com provides useful information on health, fitness, alternative medicine, animal health, dentistry, fitness, health insurance, long term care, nutrition, pharmacy, weight loss & yoga.

Created by Brandon Fisher, a young man with cerebral palsy, Brandon has assembled a variety of informative resources for both people with CP and those simply seeking more information on this condition.

DirectoryKid.com – Kids Directory which contain links all about kid, children, parent, and family, such as baby apparel, children product, toilet traning, baby equipment, feeding, education, kid safe, health, entertainment and much more.

This is a 58-category directory of CP resources. Use the tree navigation on the left to navigate to the type of resource you would like to find.

Pedal-with-Pete is a philanthropic organization, dedicated to raising funds for research to improve the quality of life for persons with cerebral palsy.

MEDLINEpIus contains a very user-friendly encyclopedia covering every aspect of medicine (licensed from A.D.A.M., Inc.).

The ORDR Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.

Technology Glossary (National Library of Medicine) – Health Care Technology.

On-line Medical Dictionary (CancerWEB).

Multilingual Glossary of Technical and Popular Medical Terms in Eight European Languages (European Commission) – Danish, Dutch, English, French, German, Italian, Portuguese, and Spanish.

Aetna InteliHealth’s mission is to empower people with trusted solutions for healthier lives. We accomplish this by providing credible information from the most trusted sources.

MedTerms medical dictionary is the medical reference for MedicineNet.com. Our doctors define difficult medical language in easy-to-understand explanations of over 16,000 medical terms.
Medterms online medical dictionary provides quick access to hard-to-spell and often misspelled medical definitions through an extensive alphabetical listing.

The A.D.A.M. Medical Encyclopedia includes over 4,000 articles about diseases, tests, symptoms, injuries, and surgeries. It also contains an extensive library of medical photographs and illustrations

Patient safety is one of the nation’s most pressing health care challenges. A 1999 report by the Institute of Medicine estimates that as many as 44,000 to 98,000 people die in U.S. hospitals each year as the result of lapses in patient safety.

A nursing home is a place for people who don’t need to be in a hospital but can’t be cared for at home. Most nursing homes have nursing aides and skilled nurses on hand 24 hours a day.

Medicare helps with the cost of health care, but it does not cover all medical expenses or the cost of most long-term care. The program has four parts:

• Part A is hospital insurance.
• Part B helps pay for medical services that Part A doesn’t cover.
• Part C is called Medicare Advantage. If you have Parts A and B, you can choose this option to receive all of your health care through a provider organization, like an HMO.
• Part D is prescription drug coverage. It helps pay for some medicines.

Medicaid is government health insurance that helps many low-income people in the United States to pay their medical bills. Although the Federal government establishes general guidelines for the program, each state has its own rules. Your state might require you to pay a small part of the cost for some medical services.

MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.

You can use MedlinePlus to learn about the latest treatments, look up information on a drug or supplement, find out the meanings of words, or view medical videos or illustrations. You can also get links to the latest medical research on your topic or find out about clinical trials on a disease or condition.

MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.

Health insurance helps protect you from high medical care costs. Many people in the United States get a health insurance policy through their employers. In most cases, the employer helps pay for that insurance. Insurance through employers is often with a managed care plan. These plans contract with health care providers and medical facilities to provide care for members at reduced costs.

Programs ensure that certain vital drugs are available “to those individuals whose income is too high to qualify for Medicaid but too low to pay for their prescribed medications.” The program has standards for fairness, equity, and unbiased eligibility. It currently covers some 14 programs for nine pharmaceutical companies. NORD also offers early access programs for investigational new drugs (IND) under the approved “Treatment INDs” programs of the Food and Drug Administration (FDA).

Standards (purchase): manufacturing, evaluation, use and sterilization.

American Society for Testing and Materials International (formerly ASTM).

Basic professional information on virtually every licensed physician in the United States and its possessions, including more than 690,000 doctors of medicine (MD) and doctors of osteopathy or osteopathic medicine (DO). AMA member physicians are offered an “expanded” listing that contains additional information American Board of Medical Specialties

Publication geared towards pediatric health care providers and professionals.

• Focal point for evidence-based assessments of medical practice and state-of-the science on behalf of the medical community and the public
• NIH Consensus Development Program
• NIH Consensus Statements
• State-of-the-Science Statements

HIPDB: national data collection program for the reporting and disclosure of certain final adverse actions taken against health care practitioners, providers and suppliers. Available to government agencies and health plans; attorneys are not permitted to query.

NPDB: resource to assist State licensing boards, hospitals and other health care entities in conducting investigations of the qualification of the health care practitioners they seek to license, hire, grant privileges, etc. Includes information regarding medical malpractice payments, adverse licensure actions, adverse clinical privileges actions, adverse professional membership actions, and Medicare/Medicaid exclusion reports. Plaintiffs may obtain information under limited conditions.