Internet Resources

The Internet has become the primary place for families seeking information, support and assistance for cerebral palsy. Everyday, the information superhighway becomes a bit more congested with information that promises to provide a host of important information.

Below are a sampling of cerebral palsy websites that we have found to be valuable.

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Web Resources about Cerebral Palsy Treatment

Dr. David Steenblock’s Clinic

Dr. David Steenblock specializes in bone marrow stem cell treatments to help cerebral palsy!


American Pediatric Surgical Association

A pediatric surgeon is a specialised surgeon who is specially trained for surgery of children and newborns. Most pediatric Surgeons initially qualify and train to perform general (routine adult) surgery. This training ensures the all round training of the surgeon. After that they specialise for 2- 3 years in pediatric surgery. Subsequently, most pediatric surgeons prefer to avoid performing surgery in adults so as to concentrate on the specialised delicate skills of pediatric surgery.


PediatricNeurology.com

Pediatric Neurology.


Journal of the American Academy of Neurology

Neurology® will provide clinical neurologists with outstanding peer-reviewed articles, editorials and reviews to enhance patient care, education, clinical research and professionalism


Child Neurology Society

Welcome to the Child Neurology Web Site. The Child Neurology Society is the preeminent non-profit professional association of pediatric neurologists in the United State, Canada, and worldwide devoted to fostering the discipline of child neurology and promoting the optimal care and welfare of children with neurological and neurodevelopmental disorders. These disorders include epilepsy, cerebral palsy, mental retardation, learning disabilities, complex metabolic diseases, nerve and muscle diseases and a host of other highly challenging conditions.


American Academy of Neurology

The American Academy of Neurology (AAN), established in 1948, is an international professional association of 24,000 neurologists and neuroscience professionals dedicated to promoting the highest quality patient-centered neurologic care.

The AAN is strongly committed to its mission and focuses its efforts on ensuring the reality of the principles and standards set forth in the AAN mission statement.


Medical World Search

Search engine: operates over a selection of medical sites, searching by using a medical thesaurus that understands medical terminology and can search for related terms automatically.


Medical Matrix

Medical Matrix – Guide to Internet Clinical Medicine Resources.


Consult, a division of the health science publisher Elsevier Inc.

Electronic peer-reviewed information resources, including publishers, medical societies and government agencies; full-text medical reference books and journals; comprehensive USP drug information; clinical practice guidelines.


WebMDHealth

Access to information is free; however, there is free registration for special services.


Medscape from WebMD

Medical information and education tools from journals, news providers and education programs; specialty and profession sites.


MedicineNet

Medical information provided by a network of U.S. Board Certified Physicians and Allied Health Professionals.


MedBioWorld

Portal: Links include 6,000 medical journals in 80 subspecialties, and the home pages of 4,000 medical associations; includes medical glossaries, disease databases, clinical trials and guidelines, and medical journals offering full-text articles.


MD Choice.com

Peer-reviewed Internet health and medical information.


United Cerebral Palsy (UCP)

United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.

UCP and its nearly 100 affiliates have a mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society.


Children's Neurobiologies Solutions Foundation

CNS is a nonprofit research foundation improving the lives of children disabled by neurological disorders through research focused on brain repair and regeneration


Medline Plus

National Institutes of Health and other trusted sources on over 600 diseases and conditions. There are also lists of hospitals and physicians, a medical encyclopedia and a medical dictionary, health information in Spanish, extensive information on prescription and nonprescription drugs, health information from the media, and links to thousands of clinical trials.


National Institute of Neurological Disorders and Strokes

The mission of the National Institute of Neurological Disorders and Stroke is to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.


National Institutes of Health

The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services , is the nation’s medical research agency—making important discoveries that improve health and save lives.

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Web Resources about Cerebral Palsy Research

Children's Hemiplegia and Stroke Association (CHASA)

CHASA is first international non-profit organization to offer information and support to families of infants, children, and young adults who have hemiplegia or hemiplegic cerebral palsy, often due to perinatal stroke, childhood stroke, or other rare causes.


Easter Seals

Easter Seals provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.


Pathways Awareness

Pathways Awareness was recently invited to Stanford University to present information on early
motor delay detection and intervention to its pediatric residents.


Cerebral Palsy International Research Foundation

Survey for People with Disabilities.


Children's Neurobiological Solutions (CNS) Foundation

CNS is a nonprofit research foundation improving the lives of children disabled by neurological disorders through research focused on brain repair and regeneration.


March of Dimes

The March of Dimes is a non-profit organization.


Journal of Pediatric Neurology

Journal of Pediatric Neurology is an English multidisciplinary peer-reviewed medical journal publishing articles in the fields of child neurology, pediatric neurosurgery, pediatric neuroradiology, child psychiatry and pediatric neuroscience. Journal of Pediatric Neurology encourages submissions from all authors throughout the world.


United Cerebral Palsy (UCP)

United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.

UCP and its nearly 100 affiliates have a mission to advance the independence, productivity and full citizenship of people with a spectrum of disabilities by providing services and support to more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For more than 60 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society.


PubMed

A service of the National Library of Medicine; includes over 14 million citations for biomedical articles back to the 1950’s and links to many sites providing full text articles and other related resources. These citations are from MEDLINE and additional life science journals.


National Library of Medicine

The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, is the world’s largest medical library. The Library collects materials and provides information and research services in all areas of biomedicine and health care.

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Web Resources for Parents of Children with Cerebral Palsy

My Angel Has Cerebral Palsy

A blog about raising a child with cerebral palsy as a single parent.


Friends of disbled adults and children

FODAC provides refurbished equipment and services for disabled adults and children to improve their overall quality of life.


Special Needs Financial Planning

Providing professional financial planning through personal experience.


ERIC (Education and Resources for Improving Childhood Continence)

ERIC is the only charity it the UK that provides children, young people and their families with information and support on childhood continence problems which include daytime wetting, bed wetting and constipation and soiling.  The Helpline is available on 0845 370 8008 or email info@eric.org.uk .  Information, a web shop and free leaflets are available from www.eric.org.uk.


Spinal Cord Injury Information Pages

Quadriplegic and caregiver resources for those living with a spinal cord injury or other disabling injuries or disease of the spine.


Spinal Cord Injury Information Pages

Quadriplegic and caregiver resources for those living with a spinal cord injury or other disabling injuries or disease of the spine.


LL medico

Unique Incontinence Products


Mountainside Medical Equipment

Quality medical supplies at competitive prices


One place for special needs

One Place for Special Needs is also a place that special needs families can call their own. “No one should have to feel alone when faced with caring for someone with a disability,” Villarreal said. “Together we can build a community where everyone understands what it is like to be a special needs family and reach out to help one another.”


Your Special Needs Store

When it comes to disability aids healthcare products, we are your experts.  Take a look around our site and find the disability living aids that best suits your style and needs.


ParentKid.com

Parent Directory related links to online parenting resources includes parenting advice, family activities, parenting information and parent experts, pregnancy, kids, adoption, family issues, parent’s tip, child care, health, literacy, family life, adolescence, and learning activities


Net Health Book

This is a free Internet based health book with information about most major medical diseases, their symptoms, diagnoses, and treatments, all in simple, everyday language.


Mental Health Abuse

Exposing the crimes of mental health practitioners


ibis-birthdefects.org

The international coordinator of OMNI-Net is Dr. W. Wertelecki, M.D., who is a Pediatrician and Medical Geneticist. In Eastern Europe related matters, the Medical Director is Dr. L. Yevtushok, M.D., a Medical Geneticist. The Webmaster is R. Ameziane M.S., and Associate Webmaster is Mr. S. Lapchenko.


HealthBegin.com

HealthBegin.com is a leading health website including sexually transmitted diseases, stroke health information, beauty, nutrition, physiology, alternative medicine,hospital, immunization, medicare, medicaid, pregnancy, physicians, dentists.


MyChild™ is a call center that provides information, resources, expert referrals, and inspiration to those touched by cerebral palsy and Erb’s palsy.

MyChild™ is a call center that provides information, resources, expert referrals, and inspiration to those touched by cerebral palsy and Erb’s palsy. 1-800-MyChild (1-(800) 692-4453).


Healthy Directory, Healthy Living Information, Physical Activity Guide

DirectoryHealthy.com provides useful information on health, fitness, alternative medicine, animal health, dentistry, fitness, health insurance, long term care, nutrition, pharmacy, weight loss & yoga.


Cerebral Palsy World

Created by Brandon Fisher, a young man with cerebral palsy, Brandon has assembled a variety of informative resources for both people with CP and those simply seeking more information on this condition.


DirectoryKid.com

DirectoryKid.com – Kids Directory which contain links all about kid, children, parent, and family, such as baby apparel, children product, toilet traning, baby equipment, feeding, education, kid safe, health, entertainment and much more.


Cerebral Palsy Directory

This is a 58-category directory of CP resources. Use the tree navigation on the left to navigate to the type of resource you would like to find.


Pedal with Pete [For Research on Cerebral Palsy]

Pedal-with-Pete is a philanthropic organization, dedicated to raising funds for research to improve the quality of life for persons with cerebral palsy.


MEDLINEpIus

MEDLINEpIus contains a very user-friendly encyclopedia covering every aspect of medicine (licensed from A.D.A.M., Inc.).


Terms and Definitions (Office of Rare Diseases)

The ORDR Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.


On-line Medical Dictionary (CancerWEB)

On-line Medical Dictionary (CancerWEB).


Multilingual Glossary of Technical and Popular Medical Terms in Eight European Languages (European Commission) - Danish, Dutch, English, French, German, Italian, Portuguese, and Spanish

Multilingual Glossary of Technical and Popular Medical Terms in Eight European Languages (European Commission) – Danish, Dutch, English, French, German, Italian, Portuguese, and Spanish.


Merriam-Webster Medical Dictionary (Inteli-Health, Inc.)

Aetna InteliHealth’s mission is to empower people with trusted solutions for healthier lives. We accomplish this by providing credible information from the most trusted sources.


MedicineNet.com Medical Dictionary (MedicineNet, Inc.)

MedTerms medical dictionary is the medical reference for MedicineNet.com. Our doctors define difficult medical language in easy-to-understand explanations of over 16,000 medical terms.
Medterms online medical dictionary provides quick access to hard-to-spell and often misspelled medical definitions through an extensive alphabetical listing.


ADAM Medical Encyclopedia (A.D.A.M., Inc.), comprehensive medical reference

The A.D.A.M. Medical Encyclopedia includes over 4,000 articles about diseases, tests, symptoms, injuries, and surgeries. It also contains an extensive library of medical photographs and illustrations


Patient's Rights, Confidentiality, Informed Consent, Ombudsman Programs, Privacy and Patient Issues

Patient safety is one of the nation’s most pressing health care challenges. A 1999 report by the Institute of Medicine estimates that as many as 44,000 to 98,000 people die in U.S. hospitals each year as the result of lapses in patient safety.


Nursing Homes and Long-term Care

A nursing home is a place for people who don’t need to be in a hospital but can’t be cared for at home. Most nursing homes have nursing aides and skilled nurses on hand 24 hours a day.


Medicare

Medicare helps with the cost of health care, but it does not cover all medical expenses or the cost of most long-term care. The program has four parts:

  • Part A is hospital insurance.
  • Part B helps pay for medical services that Part A doesn’t cover.
  • Part C is called Medicare Advantage. If you have Parts A and B, you can choose this option to receive all of your health care through a provider organization, like an HMO.
  • Part D is prescription drug coverage. It helps pay for some medicines.

Medicaid

Medicaid is government health insurance that helps many low-income people in the United States to pay their medical bills. Although the Federal government establishes general guidelines for the program, each state has its own rules. Your state might require you to pay a small part of the cost for some medical services.


Hospice Care

MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.


HMO and Managed Care

You can use MedlinePlus to learn about the latest treatments, look up information on a drug or supplement, find out the meanings of words, or view medical videos or illustrations. You can also get links to the latest medical research on your topic or find out about clinical trials on a disease or condition.


Health Statistics

MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.


Medical Device Manufacturers Association

Programs ensure that certain vital drugs are available “to those individuals whose income is too high to qualify for Medicaid but too low to pay for their prescribed medications.” The program has standards for fairness, equity, and unbiased eligibility. It currently covers some 14 programs for nine pharmaceutical companies. NORD also offers early access programs for investigational new drugs (IND) under the approved “Treatment INDs” programs of the Food and Drug Administration (FDA).


Association for the Advancement of Medical Instrumentation

Standards (purchase): manufacturing, evaluation, use and sterilization.


American National Standards Institute

American Society for Testing and Materials International (formerly ASTM).


Physician Select, American Medical Association

Basic professional information on virtually every licensed physician in the United States and its possessions, including more than 690,000 doctors of medicine (MD) and doctors of osteopathy or osteopathic medicine (DO). AMA member physicians are offered an “expanded” listing that contains additional information American Board of Medical Specialties


Journal of Pediatric Surgeons

Publication geared towards pediatric health care providers and professionals.


NIH Office of Medical Applications of Research

  • Focal point for evidence-based assessments of medical practice and state-of-the science on behalf of the medical community and the public
  • NIH Consensus Development Program
  • NIH Consensus Statements
  • State-of-the-Science Statements

Healthcare Integrity and Protection Data Bank

HIPDB: national data collection program for the reporting and disclosure of certain final adverse actions taken against health care practitioners, providers and suppliers. Available to government agencies and health plans; attorneys are not permitted to query.


National Practitioner Data Bank and the Healthcare Integrity and Protection Data Bank.

NPDB: resource to assist State licensing boards, hospitals and other health care entities in conducting investigations of the qualification of the health care practitioners they seek to license, hire, grant privileges, etc. Includes information regarding medical malpractice payments, adverse licensure actions, adverse clinical privileges actions, adverse professional membership actions, and Medicare/Medicaid exclusion reports. Plaintiffs may obtain information under limited conditions.